Prayer Request

I'm sorry that I haven't finished my hospital story. I have been so sick and exhausted and not able to read or concentrate. So writing has been out the question.

However, I do have a prayer request in the mean time. That you would pray that we could have the funds for treatment. Currently we are running very low and IVs are nearly completely out of the question, however, I am badly in need of them!

I am going downhill quite rapidly, as I am not on treatment, and for the last 3 months or so, I have been on oral antibiotics, all the while going downhill. Just as we had to stop the IVs due to lack of funds, I had started to see some progress. But with a couple rounds of oral treatment, and now completely off treatment, I am struggling big time.

I have been VERY blessed with the help from others, as they have had a heart for me and my situation, whether they knew me or not. And for that I am grateful beyond any words!!

I have been so blessed! Thank you to each one of you that has blessed me financially, through prayer and support, or through little things like visits, mail, etc. (Those little things are actually big to me! They are all big.)

Also, I ask that you pray for my mom and younger sister (my caretaker). They both have Lyme Disease and it is tough for them to go to work every day or to get up and take me out to all my appointments.

Also, we have black mold in our house, making it nearly impossible to get well until it is completely taken care of, as it is extremely toxic. I suspect that this is a big factor to our health and lack of healing. Honestly, this is one of the scariest things for me in this illness. I'm fighting so many battles, so many infections, toxins, etc.

Please pray that we will know what to do in the long run. Its scary, not knowing what God has planned for us. But we are trying to lean on Him, to show us the way, to lead us in the path He has planned for us and to accept that.

Thank you in advance for being my/our prayer warrior!
~Lynnelle

Part 1: LONG Over-due Update

I am so sorry that there hasn't been an update on here for so long! There is so much I could update you on but we will just skim the last several months. (Honestly, I can hardly remember them, my memory is really really bad right now. :(  )

Until about 2 months ago, we switched from IV antibiotics to orals. This has NOT been an easy change, but due to lack of funds, we felt that that was the most wise way to go.

I have a bad stomach, so oral antibiotics just push that farther. It just seems to add to the internal/abdominal pain and turmoil vs. IVs not quite so much but MUCH more to the head. I don't know, both are hard!

So we will back up a couple weeks here:
Monday morning- my home health nurse came as usual. I had left my port accessed for her, so that she wouldn't have to stick me, not that I'm afraid of needles by any means! When she was done she deaccessed me, ran the needle to the sharps box and quickly put a "pretty sparkly" band aid on.

Late that night I took it off and to my horror there was a whole in my skin! Keep in mind I do have EDS, so my skin is more fragile, and it was quite thin over my port, but I could not believe that she didn't notice, or just ignored this whole that I could see my port through!

So I had to properly clean it and dress it and even though it was the week that I was supposed to be dripping fluids, I proclaimed that NO needle was entering until I felt comfortable with the way it looked. It closed up great and was healing well!

However by Sunday night Monday to Sunday, 1 week), before I was to start treatment on Monday, I was so dehydrated I decided,  that it had healed well enough that one stick would be ok. And that is where the next store time starts. And let me tell you, its a roller-coaster, ride at your own risk!

And I want to say a big shout-out  to all the people who come over here from  http://lymewithpurpose.wordpress.com/ faithfully, waiting to hear something, I'm sorry to disappoint for so long, but now you have more to hear than you might want! lol!

I had NOT planned on being awake all night, to even see the sun set, but here I am. Pain and insomnia have a way of doing that to you. I took pain meds, I took meds to sleep (and trust me, what is prescribed should definitely know a human to sleep! But you would have thought they were sugar pills.

I guess its through the pain and frustration that finally gave me the final push to just get on and update people. How do people know when I'm not blogging? How do you know how to pray if I don't update? But like my friend Andrea just said, it is through your prays that I can keep going, not falling into depression, and not becoming so bitter like so many other people with Lyme. If you are wanting specific ways that you can pray beyond the depression/anger/bitterness:

• I'm in Extra constant pain, often quite uncontrolled 
• We are in need of financial support in order to continue with treatment and other medical bills now. 
• And that the Lord would give us guidance in upcoming situations/decisions.

Also a BIG Thank you to Andrea! She has given me a great way to try to relieve my pain in bed and it is working. Kind of. Its starting to flare up again, but I think in the long term its going to help a lot!! Thank you Andrea!! ::grin::  (just for you :))

So part 2 should hopefully be up soon! I want to get it up before I forget EVERything....my memory has taken a bad downward turn for the worse.

The sun is about to shine in my face and I'm exhausted!! So I'm going to get something in my stomach, take my morning meds and TRY to sleep!

Ciao for now!