I started treatment last Monday and I am herxing, these bugs are desperate to live and they are driving me insane!
This was right after surgery and I wasn't accessed. But you can see the tiny red dot below the incision, that is where the center of my port or the septum, is and the needle will go.
And this is with it accessed!
Now, I will attempt to try to explain THIS months treatment plan, it is a bit confusing, until you live and breath it, and then you can still get confused. :)
So treatments will only ever be on Monday, Wednesday, and Fridays, 3 weeks on and one week off where I'll go back to D.C. to see my Dr. and figure out the new plan.
This month is:
1st. week: IV antibiotic, 2 times a day
2nd week: add in an oral antibiotic
3rd. week: I'll add yet another oral antibiotic, but that one will be Thursday and Friday only.
4th week: OFF! And back to D.C.
I know next month they are going to add another IV antibiotic, plus Mepron (a thick, yellow-like, paint med for Babesia), and who knows what all else. I may update you then, however no promises.
Anyway, I had to find something to take my mind off these bugs and the pain and all the other symptoms.
Also, please continue to pray for my friends I mentioned last post, particularly Juliana. She was admitted today, they don't know what is going on, but its NOT good. This was her first trip outside the house this year....in an ambulance. :(
AND.....I have now realized that these "bugs" is actually all over nerve pain, just coming on slowly. :(
I know what you mean bout trying to explain treatment plan to non-lymies! It can be so confusing!
ReplyDeleteHang in there! I'm rooting for you!
Love you girl!
-andrea