Technical difficulties...

I'm sorry my blog looks so strange, all the double spacing, etc. I don't know what is going on and I have no idea how to fix it. I'm really not good with technology and all that good stuff...so I will have to recruit help.

Also, I need a blog makeover, anybody want to volunteer??  ;)

Company and Reality

So this last Sunday early morning, my wonderful cousin came to visit for a few days. I've been so excited to see him, its been probably 18 months since we last were together.


I couldn't believe how ok-ish I was feeling. Now, I was by no means feeling great or even good. But I was able to be out of bed and sit on the couch a few times.


Yes, I did have to medicate several times in order to handle the noise and commotion, but for the first 2 days, I was making it work. I even got out of the house to go for lunch and have a ride in his sweet rental car.


But by day 3, I was starting to crash. Headache/migraine all day(lasted 3 days) and in general, stuck in bed. But it worked out since he and my little sister went to the coast and I wasn't going anyway. And he left Wednesday. So it was a short trip but super nice of him to come!!


But having company made me face and really see the reality of my situation. I often just float along in denial of how sick and limited I am. I feel like garbage all the time, but I guess I've come to a place of acceptance of the situation where I don't pine away each week to go to church, or youth, or shopping. In fact, they look quite unattractive to me right now, being so sick. This is just normal life for me now.


But having company here and still spending most of my time in bed or laying on the couch, unable to go out with them, to really have the best time, reality slapped me in the face a bit. I really am sick. And it really is serious.


YES, I already know all this, but when this life becomes your normal, you just get used to it. I think its partially a coping mechanism, you just can't lay here each day wishing for the life that you can't have at the moment, you would go batty!


I have since found out that a lot of different people were praying for me this last week and I can say I felt them so much!! I was able to get through and enjoy some time with my cousin, which was wonderful!


 I did however really crash the day he left, crashed pretty hard. Its taking me a while to pick back up but it was worth it! The sad thing was to see how hard I crashed, over being out of bed for such a small amount.


Literally, I was up with them for an hour maybe Sunday evening, out for lunch and a ride for 2 hours Monday, and then about an hour and a half Tuesday night. (I really can't remember for sure, but that really about it.)


I want to thank each one of you who were praying for me! Thank you so much!!!
And of course, Lee for coming to see me! (I don't know if he reads this, but thats ok! :)

Blogging...

I have so many things I want/need to blog about. 

But alas, I've been just way too sick.

I was even going to give you a sneak peak of what my next post was going to be, but I forget now. 

Sorry. 

If you have emailed, texted, sent messages on my facebook or anywhere else, please know I am not ignoring you.
I know I am WAY behind.

I am just really sick.

In other news, I am excited for this weekend, my favorite cousin is coming to visit!!
Can't wait to see you Lee!!! 

Gratitude!

So I haven't done a blog post recently about the different ways I have been blessed and that's a problem.
I want to say how blessed I am and show my gratitude for it all!!

I have had several people send me care packages, unfortunately, I can't remember who all and I don't often remember to take pictures. (But yes, I do send out thank you notes for each one. At least I try! If you have sent something and haven't received a TY, I apologize!) I LOVE getting packages and each one brings joy to my heart! Thank you so much!!

I have had people sending financial support, which is amazing. This disease and everything it entails is financially crippling and each gift is so greatly appreciated!! Thank you, thank you, thank you!!!

People have sent balloons, cards, flowers, and their love. I can't say how much it means to know that you have not been forgotten and that people care!

Thank you to each person who has sent something, thought of me, or prayed!! I am really indebted to each of you!

One thing that I did manage to get pictures of is something my sweet friend Kate sent me, Emi Jay hair ties.

They come packaged up so cute!! 

Not such a great picture, what do you expect with a cheap phone camera? 

These hair ties are amazing!!! 

They do not cut your hair. No metal. No glue.

They do not dent your hair. 

And they are super fun!!

Thank you Kate!! I am thoroughly enjoying them!!! <3 

My Bed...

I have not adequately mentioned my appreciation for my warm, cozy bed. 

I adore my bed. 

Love it! 

I am SO thankful that I am blessed to have such a luxury. 

Multiple blankets. 

Soft jersey knit sheets. 

Memory foam mattress topper. 

Thank you for my bed and blankets, Lord! 

You have blessed me immensely!! 

Amen. 

<3 <3 <3 <3 

Lynnelle

One of those moments...

Ever have one of those times where you have virtually NOTHING presentable to wear?
Yeah, that is me right now.
One of the disadvantages of loosing 75 lbs and dropping 6+ sizes. No joke.

Not that I go anywhere but to Dr. appointments, but you still have to look presentable, pajamas(the majority of my wardrobe) don't quite cut it.

I typically love shopping, but its a lot less fun when you have to do it online, and with a very limited(or no) budget.
(Have no idea where I'm going to find affordable, warm, comfortable boots.)

Question of the day- Are UGGs worth the price?? They look marvelous but seriously, the price is absolutely ridiculous!!
If you have had a pair, please let me know what you think!! Thanks!

Recovering

So after a week of recovering, I am starting to wean down off the Oxy, my pain is more manageable, and my swelling is going down. I still have a couple pounds of water weight but it will gone soon, I'm sure. 

I had been back on my cane around the house, which I am really stubborn about, but I'm pretty much off it again. Which is nice, I hate using the cane around the house! Problem is my back muscles are so atrophied that I rely largely on my abdominal muscles to carry me around, and when they were impaired, I just couldn't move. But we're back with the program. Almost, still can't lay flat out very well, and sitting up is a bit of an art.  :) 

I wanted to emphasize just how amazing my experience with the River Bend Hospital was!! I've had some really really bad experiences there before but with the ER and surgery this time, I was SO impressed. They really took care of me the whole time, watching out for me and keeping everything in MY best interest. I didn't have to fight or argue a single person about the whole Lyme thing, which was SUCH a relief! And lots of the nurses were actually interested in learning more, or actually knew somebody who has/had Lyme and wanted to just talk about it. 

The only negative is that my PCP/LLND did confirm what I suspected and was concerned about in the hospital, my IV did get infected. It is still very bruised and sore and the lymph nodes in my elbow there are swollen. She said that she can feel the cords of scare tissue all the way up my vein. I'm hoping this heals up and repairs itself, I don't need anymore scare tissue in my one vein that actually usually works! I am still having fevers, which I thought should have stopped by now, so she suspects that I might still have some of that infection going on, we did labs but I guess I won't get to hear anything until Monday. 

I want to thank everybody for all your thoughts and love and prayers!! God is good, and I am healing. A bit slow going but I'm OK with that, its happening. I hope you all are well and spreading the love today!! 

<3 <3 <3 <3 

Lynnelle